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Sunday, May 19, 2013
Sickle Cell Disease is an inherited chronic illness, which results in anemia (low blood counts) episodes of pain and increased susceptibility to infections. Any complication, if severe or untreated, can be life threatening. Immediate treatment at a hospital or sickle cell center is required under these circumstances.
Absences - Sickle cell patients may be absent because of severe pain episodes caused by the blockage of blood flow to body organs or bones. These may require treatment in a hospital setting.
Helping Students to Keep Up - Make-up work for students should be provided to keep the student current with assignments. A hospital or home-based teacher may be required for prolonged complications.
Those with sickle cell should be treated as normal as possible with an awareness that they may have intermittent episodes of pain, infection or fatigue that can be treated and sometimes prevented through adequate water intake and avoiding temperature extremes and over-doing it. Listed below are some strategies that may help in preventing a pain crisis.
Keep Hydrated - Allowing the individual to keep well-hydrated with water may prevent pain episodes. Do not limit access to water as their requirements are increased. This will necessitate frequent bathroom breaks also as their kidneys cannot retain water as well. Let the individual keep a water bottle with them or allow frequent water breaks.
Control Environmental Temperatures - Pain episodes may also be prevented by not allowing the individual to become over-heated or exposed to cold temperatures.
Allow Resting Periods - Because of their anemia, individuals with sickle cell may tire before others, and a rest period may be appropriate. Encourage gym and sports participation, but allow the person to stop without undue attention.
Intelligence and Academic Performance - Sickle cell disease does not affect one's intelligence, but various factors of this lifelong illness may impair academic performance. These should be identified and addressed as they would for any child. Academic performance is important as the life expectancy for those with sickle cell is now up in the forth and fifth decade. Those with sickle cell can become professionals like doctors, engineers, and lawyers as well as anyone.
Physical Features - Sickle cell patients may have a yellow tint to their eyes because of the anemia; this is not usually a liver problem. They also may have a shorter stature and delayed puberty.
The individual should seek medical attention if the following occurs:
By learning about sickle cell disease and understanding the challenges that may be faced, you can develop a plan of action with the individual to do what you can to keep them productive and complication free.
This content was taken directly from The Sickle Cell Information Center and prepared for display on NetWellness by Valerie Mann-Jiles, DNP, ANP-BC, Adult Sickle Cell Nurse Practitioner, and Saquena Atkins, MSW, LISW, Adult Sickle Cell Social Worker, James Cancer Hospital and Richard J. Solove Research Institute, The Ohio State University.
This article is a NetWellness exclusive.
Last Reviewed: Nov 18, 2008
Eric H Kraut, MD
Professor of Hematology
College of Medicine
The Ohio State University