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Hemophilia and Inherited Bleeding Disorders

von Willebrand

12/17/2007

Question:

i have had von willebrand all my life and so does my oldest son. i am 62 and recently had by blood levels tested by dr sanchez hematology/oncology locally since it had been years. i had trouble with surgery about 8 years ago and was given ddavp which was okay. on my followup after the blood ntest recently dr sanchez said i didnot have von willebrand anymore. i was relieved but confused. can it go away. should i be tested occassionally. thank you for any info you have judy

Answer:

Von Willebrand's Disease is an inherited lifelong disorder. However, the von Willebrand clotting factor levels are affected by things such as stress, hormones, and vigorous exercise.  Therefore, people with mild von Willebrand's Disease can sometimes have normal clotting factor levels.  The von Willebrand levels can go up temporarily due to stress, hormones, and/or exercise and then go back down again later.  Unfortunately, one or two normal lab tests does not mean that the von Willebrand's disease is gone.

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Response by:

Madeline Heffner, BSN, RN
Nurse Coord.
College of Medicine
University of Cincinnati