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Inherited Disorders and Birth Defects

Excersize and myotonic dystrophy

01/23/2008

Question:

Anne Matthews of Case Western said regarding mytonic dystrophy "Medications are available that your doctor can prescribe to reduce myotonia, especially if it interferes with daily activities. Physical therapy and occupational therapy, as well as regular exercise may help minimize the progression of muscle weakness. Ankle and leg braces may help support these muscles." My daughter`s MD doctor has advised NOT to excersize, nor has she reccomended any medications. Does Dr. Matthews` advise hold true for all cases of mytonic dystrophy?

Answer:

Because myotonic dystrophy (MD) can vary a lot from person to person, management or treatment for it may be very different from person to person. The information about physical therapy or exercise and medications can be found at the Muscular Dystrophy Association website. These are general recommendations and may not be appropriate for all people with MD. Your daughter's doctor may have specific reasons for recommending no exercise or medications. You may want to talk to the doctor about these issues.

Related Resources:

Muscular Dystrophy Association

For more information:

Go to the Inherited Disorders and Birth Defects health topic, where you can:

Response by:

Anne   Matthews, RN, PhD Anne Matthews, RN, PhD
Associate Professor of Genetics
School of Medicine
Case Western Reserve University