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NetWellness is a global, community service providing quality, unbiased health information from our partner university faculty. NetWellness is commercial-free and does not accept advertising.
Wednesday, May 22, 2013
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NetWellness is a global, community service providing quality, unbiased health information from our partner university faculty. NetWellness is commercial-free and does not accept advertising.
Wednesday, May 22, 2013
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Inherited Disorders and Birth Defects |
Research being done on myotonic dystrophy08/18/2008 |
I was wondering if you heard of any trial studies going on to cure Myptonic Dystrophy?
The National Institutes of Health has appointed The University of Rochester Medical Center in Rochester, NY, to manage the National Registry of Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Patients and Family Members. The purpose of the registry is to enroll and conduct research studies, some of which are aimed at finding cures for the disease. The website is listed below.
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Anne Matthews, RN, PhD Associate Professor of Genetics School of Medicine Case Western Reserve University |
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